Stop the World, I Want to Get Off

(Originally written March 2013)

Oh wow, where do I begin?

This blog post will not be creative or clever or humorous.  This blog post is about me and my life lately, which has most definitely not been humor-filled.

So, after about four years of having my depression medicinally controlled, I recently had a relapse.  I've also been having panic attacks and I finally admitted I needed some therapy regarding my ex-husband trying to strangle me, so they diagnosed me with post-traumatic stress disorder.  I have put on a lot of weight (not sure how since I don't eat much and have IBS) and have been living with physical pain for the past few months that has been getting increasingly worse.  My doctor has been trying to get my GERD under control and finally sent me to a specialist.  They did an endoscopy and placed a monitoring chip in my esophagus that recorded 233 reflux events in 2 days.  That impressed the unimpressable specialist, so he sent me to see a surgeon to consult about having a Nissen Fundoplication surgery.  I'd never heard of that before, but it's a surgery in which they wrap part of your stomach around the lower part of your esophagus in order to clamp it closed and prevent acid from coming back up.  If they are able to keep it laproscopic, it is a few days in the hospital and a two week recovery.  But, if they have to do open surgery, the recovery is six weeks.  My reflux has been so bad that I have aspirated numerous times on the acid, which is both extremely painful and thoroughly frightening.  However, the surgeon I consulted with told me that I was too overweight for that surgery and recommended a gastric bypass. Not only do I not want any bariatric surgeries, but my insurance won't cover them.  So, I guess my only other option is to lose weight.  My husband and I have started using Weight Watchers three weeks ago and so far, I have lost 7 pounds, so I pray it continues to help us.  Along with going to see the GI doctor, I have been trying to make the rounds, doing what my doctor has recommended.  Tried to see a OB/GYN about possible tubal ligation syndrome and some painful cysts, but her bedside manner left something to be desired, so putting that on hold temporarily and will seek out a better doc later on.  I'm also going to a psychiatrist and therapy for the aforementioned issues.  They changed my medication and that made things really interesting.  I had an allergic reaction to the new antidepressants and broke out in a rash and my hands swelled and went numb.  Another med I was given caused dizziness.  I felt like I was walking around in a narcotic fog.  I felt unsafe driving or going to work.  Between my extreme joint pain, the dizziness, and the depression, I felt like I could barely move.  The new meds seem like they are helping, but it's slow and I have been weepy in the meanwhile, which I hate.  I get really frustrated with myself that my body betrays me.  Everybody has stress, so why do I bawl and get migraines and have panic attacks when I am stressed?  Lately, I have felt like I am barely able to take care of myself, let alone my family, or have the strength to do my job or perform my household duties.

Arrena, my oldest, is 12 and in the 6th grade.  I have long considered her trustworthy and responsible.  However, the growing pains of starting middle school have been harder than we thought.  Things are different than when I was her age.  We didn't have texting and internet or social media.  So, I needed some time to think and pray and determine what the rules would be for her.  In the meanwhile, the rules were: no boyfriends, no texting/talking to boys on the phone, no boys on the internet.  We got her a cell phone for Christmas, primarily for texting her friends.  The rules of the cell phone were no boys, no deleting conversations, and mom had free reign to look through the phone.  One day, a friend called me to report some suspicious content on Arrena's Facebook page.  One of her friends had posted something about her having a boyfriend.  I confronted her about it.  At first, she tried to lie to me about it, but finally admitted this was her second boyfriend.  Much crying and talking and apologizing, and I made her break up with her boyfriend in front of me and didn't let her go to the Valentine's dance at school.  I thought that would be punishment enough.  A few weeks later, her sister ratted her out that after breaking up with the boy in front of me, she renewed the relationship until she decided he was cheating on her.  Her friends were telling her that her mother would never know.  As punishment, I took her phone for a week.  The following day, I went through her phone and found that she had another boyfriend.  She was talking to her friends about texting a boy, but I couldn't find any text conversation with a boy because she had deleted it.  I found cut-and-pasted conversations in her notepad, talking about "love."  I had known she had a crush on this boy and had asked her a few days before if they were "dating" and she told me no.  It turned out that she had hidden him in her phone under a girl's name.  It's not so much about the "boyfriend" because at this age, it's little more than a title.  However, we know from culture that "things" are happening faster and faster these days.  I want to protect my daughter which is why I have rules.  It's not as much about having a boyfriend as it is about breaking the rules, and lying, and sneaking around, and being deceptive.  So, this time the punishment had to hurt.  I took her phone permanently and grounded her from phone, internet, social media, sleepovers, and extracurricular activities indefinitely.  I think quitting drama club hurt her the most.  She started off defensive and angry.  We talked about how I cannot MAKE her obey, but that she has to decide whether or not she wants to follow Christ and what Jesus wants her to do.  She asked me if she had to break up with him.  I told her that judging by the last time, I couldn't make her do anything, but that she should figure out if she wanted to live in disobedience and what being Christ-like meant.  After a few days, she came to me and told me that she had ended the relationship.  I am not sure how to trust her or how long it will take to repair the broken relationship.  She has been complaining to everyone who will listen about how unfair the indefinite grounding is.  I'm sorry, but since when did these PRIVILEGES become RIGHTS?  Some days I really think about switching to an Amish-like existence.  I think it would be better for all of us.  And apparently her dad is criticizing my punishment behind my back, all the while telling me that he agrees and doesn't like her friends and doesn't believe she should be on the internet at all.  Nothing like some cooperation in parenting and undermining my authority.

Kimberly is 10 and in the 5th grade.  She has been having attitude issues for a couple of years.  I have been concerned about her mental and emotional health for a while.  She doesn't sleep well and was having some crying spells.  She followed her sister's suit this past year in going through puberty and that ramped everything up about 30 notches.  She went from being mama's girl and a touchy-feely kid to being mean, hateful, and not wanting anyone to touch her.  I tell her I love her and she says, "whatever."  I ask her what she's up to and she says, "what do you care?"  I try to hug her and she flinches like I'm diseased.  She used to crawl up in my husband's lap and begged me to marry him and now she treats him like something she stepped in.  And it's not just us.  I've caught her screaming at her brother that he is a freak.  She mouths off to her teacher.  And she tells off fellow-students. And before I even finished writing this blog, I discovered by accident that she'd been looking at pornography on the Internet.  Then I found out that she was contemplating cutting.  She not only told a friend of mine and admitted it to me, but apparently one of her friends reported it to an outside agency that reported it back to the school, so the principal pulled me aside.  She is now on a mild antidepressant.  Then her sister squealed on her, as payback, that she had a boyfriend too.  Talking with her about these things initially improved things.  The other day, she was throwing attitude at my husband and I and when I spoke to her, she started questioning her faith.  She said that she's glad it works for me, but it doesn't work for her.  She said that if God is real, He doesn't care about her because He isn't helping her.  This breaks my heart more than anything.  I know how hard life is and I can't imagine doing it without having God to help me, without having hope.  I don't have many expectations for my children as they grow up or any high and lofty dreams.  The one thing that I want for them is to follow Christ.  I want them to grow in his love and to be Christ-like.  I don't want them to struggle through life and make life-changing mistakes.  And I want to see them in heaven someday.

I've written about Billy's issues before.  He's 8 and is in the 2nd grade.  We have been dealing with his behavior issues for years.  He has been going to a psychiatrist and counseling for 3 or 4 years.  We have been arranging and rearranging medication for him as things work and stop working.  They never wanted to pigeon-hole him, but the working diagnosis is ADHD, ODD, and severe mood dysregulation, although his symptoms could also fit Asperger's, which we have long suspected.  We have had our fair share of problems with him.  Primarily his misbehavior was at home.  He occasionally would act out at school or church, but mostly, he saved his meltdowns for us.  He has jumped out his window, tried to run into a highway, threatened me with scissors, called 911 for the heck of it, screamed obscenities/threats/hate, and threatened to hurt himself, among other things.  When he gets really worked up, we have to hold him down for about 15 minutes and he seems to reset.  He obviously has sensory issues and we know that certain situations will overstimulate him and cause problems.  As this has been going on for so long with little change and he has become more and more violent, the counselor has recommended that we look into in-patient treatment for him.  This is not something that I want to do.  He's my baby and I can't imagine turning him over to strangers.  He is a mama's boy and I am afraid of how he would take it as well.  I will do whatever it takes to help him, but I pray that it doesn't come to that.  This year, he has started really acting out at school.  Numerous times, I get phone calls while I am at work from the school to come and get him.  He has been suspended once so far, if you don't count all the times he has been sent home early.  They have made accommodations for him over and over.  I have tried to get him an IEP or get him into a special ed program, but they don't want to test him yet so close to the end of the school year, and with so little data since he has only recently been acting out at school.  In the meanwhile, I feel like we are stuck between a rock and a hard place.  He is running away from the staff, biting/kicking/hitting adults, throwing chairs, knocking over tables, totally out of control.  And it is usually over small things.  The other day he punched one of the support staff in her stomach.  I'm thankful it wasn't the vice-principal, who is pregnant.  They had to evacuate his classroom one day because he was on a rampage.  I don't know where we go from here because it sounds like the school is at the end of their rope.  I am afraid they are going to expel him and then I don't know what we will do.  When I talk to his dad about it, he blames us, the school, the medication, the doctors, etc.  He thinks we need to send Billy to him, that he needs more time with his dad (even though he goes months without seeing them of his own volition).  I sent the kids there for spring break and Billy's first day back, he was out of control at school again.  His dad thinks I should quit my job and homeschool Billy, even though he is not paying child support and when he does pay, it's an insulting amount.  I completed paperwork for evaluations from Children's Mercy and K.U. Med Center to try to pin down a diagnosis because right now, we are not trusting his psychiatrist.  When I try to research his diagnosis, I have trouble finding it and what I do find says the opposite of what he says.  We quit going to the counselor because he quit counseling Billy and switched to family counseling, which obviously isn't doing Billy any good and wasn't helping anyone else since Kimberly refused to talk to him.  I wonder how much longer we have before the violence at school becomes a criminal matter.  How long til they start calling the police when he hits the adults?  This has to be controlled before he is big enough to do damage to people.  How long will the school drag their feet before they acknowledge that he needs special education classes?  After two months of asking, I finally put my IEP request in writing.  I got a letter that they will contact me within 30 days, which is very close to the end of the school year.  I'm trying to fight for my son to have his needs met and be in a safe environment and not a drain on the staff, but then sometimes I feel like I am defending myself to them.  I feel sorry for him, that he is constantly in trouble, but what are we supposed to do???

When it rains, it pours.  Can't have one problem at a time.  And the world doesn't stop because you are struggling.  You have to go to work, you have to go to the store, you have to go to church, you have to keep going, while people all around you have no idea the turmoil that is going on inside of you.  You smile, you say "fine" when people ask how you are,  you put on the perky persona at work since depression doesn't sell.  Yet all the while, you feel like life is crumbling around you.  Why doesn't everyone else notice?  Why can't they feel the pain radiating off of you?  Why doesn't the world stop spinning?  And then you look around and wonder what is behind all the masks you see.  The cashier at the grocery store, the customer at work, the crazy driver that just cut you off--what private pain are they hiding?  And so you keep smiling, not because you feel like it or necessarily because you want to hide your pain, but because you want to give a tiny ray of hope to someone else who might be hurting.

Happy New Year

So, if you know me or my family or have read this blog before, you know that my son has ADHD and ODD and we are in the middle of counseling for that, as well as medicating him. It has been a VERY bumpy road, but over the last four years, I've grown accustomed to most everything. I get tired and frustrated, but mostly, it's nothing new. This week has shown me that I ain't seen nothin' yet. Welcome to the new year....

Billy, as you may know, is six years old. He and his sisters went to visit their dad on Christmas day and stayed until the 27th. Billy came back a new boy. It was amazing. I thought maybe they had found a look-alike to switch him with or maybe he had been hypnotized or something. The only real answer was that his dad had given him a PSP (Play Station Portable) for Christmas and he was told that if he didn't behave with us, he would lose it at his dad's. As an added incentive, he was also informed that his dad would buy him some new games for it, if he was really good.

For two days, he was an angel. I was dumbstruck. He didn't get in trouble for anything. He was sweet and pleasant and I really enjoyed him. I was recovering from being sick, so it was nice to be able to sleep in, my husband gave him his morning medication, and then I woke up to a happy family.

We were running low on his morning meds, which are his primary ADHD medication. His psychiatrist had had to cancel his appointment and couldn't fit him in again until the end of January. They went ahead and wrote a prescription to make up for the month. His doctor's office is in Leawood, KS and we live in Raytown, MO, so I waited to pick it up until he had his counseling appointment in Overland Park, KS on Friday. While his behavior for two days had been exceptional, his counselor predicted it would be short-lived. Judging from the behavior we had recorded before Christmas, Billy obviously wasn't taking us seriously and it was time to up the ante. He brought Billy in and explained to him that he cannot continue to treat his mother the way he has and outlined the new rules, which allow very little wiggle room for him. And, sure enough, the good boy started to unravel later that day.

I didn't think to take the prescription in immediately to have it filled. He had his last dose yesterday morning. About 5pm, it dawned on me that it was New Year's Eve and the pharmacy might be closing early. I called and it was already closed. I thought I might go out after the kids went to bed and find a 24-hour Walgreen's to get it filled.

Billy ended up having a meltdown. It all started because he took a bite of a sandwich that had been sitting on top of the trash can. I said that was gross, so then he wanted me to kiss him, to gross me out further. When I refused, he picked up a can of Febreze and aimed it at me. I told him to put it down several times. He ignored me and sprayed me in the face with it. He not only got me, but also the chicken I was cutting up for dinner. I told him to go to his room and since this was his second strike, he would be getting a peanut butter sandwich for dinner, instead of eating with the rest of us. He refused to go, so he was escorted to his room. He returned with a boxed game and threw it at me, hitting me in the back. My husband got up then and dealt with him while I finished dinner. It sounded like a major battle in there, but Scott eventually got Billy calmed down, but not before Billy tore down the shade in the window.

However, after bedtime, Billy started banging on the door, which is a no-no, according to his counselor. As per the counselor's instructions, I went in and held him down for 15 minutes (once he gets riled, he continues to escalate--the holding seems to "reset" him), during which he fought me constantly, spitting on me, etc. After that, I found that he had broken a CD I had let him borrow from the library, so now he not only has to use his Christmas money to replace the shade, but also the CD.

I was so wiped, I didn't want to get out again, so we decided we would get his meds filled on our way to church since the 24 hour Walgreen's is about a block from the church. But, we slept in and missed church. When we woke up, we were laying there, discussing what the game plan was for the day when the house phone started ringing. The only people that ever call our house phone are the kids' friends and telemarketers, so we didn't run to answer it. But, then I heard sounds of a child skirmish, so I immediately went to check it out. Billy's hands were covered in what looked like glitter glue. His oldest sister was screeching about how he had dumped out all of her makeup and something about prank calls they had been getting. I was in the bathroom, trying to wash Billy's hands when the doorbell rang. Our middle child looked out the window and yelled, "Oh my goodness! It's the cops!" I could hear my husband let them in and talking to them and I gathered that Billy had somehow called 911. The "prank calls" the girls had been referring to was the 911 operator trying to call back. It came up as blocked and the girls wouldn't answer it.

I finished cleaning Billy up and sent him to put some clothes on since he was running around in his underoos, for some unknown reason. Then he went to face the two police officers in our living room. They were very nice and understanding, but the woman lectured him on the difference between an emergency and playing with the phone. He looked scared while they were there, but after they left, he was laughing like it was no big deal. We were NOT amused. We sent him to his room.

I went out to get his meds refilled. The pharmacy we usually go to was closed for the holiday, so I went to Walgreen's. They told me they don't accept our insurance anymore! Since when? I get his nighttime meds there every month because our other pharmacy doesn't carry it! And it isn't as though we have some weird insurance--it's Blue Cross Blue Shield! She said that they made a deal with CVS. Lovely. I DESPISE CVS! Now, I'm wondering if that's the only place I can fill at now. If so, that's ridiculous! And thanks for changing our insurance without telling us!

So, I headed over to CVS, reluctantly. Of course, instead of a 20 minute wait like everywhere else, it's going to be an hour (guess that's better than the time I had to go there for meds for an allergic reaction I was having--don't get me started). So, I go to the store to get a few things and kill time. While there, my phone rings. It was CVS calling to tell me that they couldn't run my discount card. Our psychiatrist gave me a 50% discount card because the meds are so expensive. Even with insurance, the copay is $60 a month. The card makes it $30 a month. It's still a lot when you add in that he has two other meds (not as expensive, thank goodness) and the copays for both a psychiatrist and a counselor (the latter he sees once a week). Well, I guess I didn't realize he had been on it so long, but it's only good for a year and guess what? The year is up. Of course it is. They told me that if I can get the info for another card over the phone, they can process it that way. But, it's Sunday and it's New Year's Day, so there is no one in the doctor's office to give me numbers off a new discount card. So, now it's a decision of whether I buy the groceries in the cart or buy Billy's prescription at full-price. My husband and I decided since it was getting so late anyways, we would just give him his afternoon pill and try to call the doctor in the morning.

So, I finished my grocery shopping and came home. We were putting away groceries and cleaning up when my husband found that Billy's bottle of nighttime meds (anti-depressant) was empty. I just filled it about a week and a half ago. I nearly lost it. Billy denied it at first, but eventually cheerfully confessed to pouring it down the drain because it tastes yucky. I'm looking into the face of this adorable 6-year-old, who is telling me that he just wasted some more medicine that I am sure the doctor will not refill this soon. He is smiling, like he he has had the best day ever, despite the police showing up, the absent meds, the glowering twitching parent in front of him. Then I notice the blue fish stamps all over his face. I look around the room and see green marker on the carpet. I demanded all the crayons, markers, stampers, anything that marked. I confiscated them all. Then I gave him an hour to get his room clean or I would clean it for him.

An hour later, my husband and I came back and filled up two trash bags. Billy acted like he didn't even care. How do you work with a child that doesn't care and doesn't have any remorse?

It's like I have an overgrown two-year-old. I feel like I need to sleep in front of his door or handcuff myself to him so that I know where he is and what he is up to every second of every day. He sneaks out of his room at night and pours liquid soap out into the bathtub or hydrogen peroxide all over the floor. He mixes soaps with bath fizzers. He scratches "No Girls Allowed" in the paint on his wall. He finds scissors and cuts large holes into his pajama bottoms and pillowcases. He squirts his sister's body lotion all over the basement floor. He put her lip gloss on all the doorknobs. And that's just the mischief he gets into.

There's the spitting and the punching. He calls me an MF. He calls his sisters the B-word. He calls everyone idiots. He throws things at his grandma. He tears up everything, or tries to, when he has a temper tantrum--from kicking car seats and windows when we're in the car, to tearing down blinds and throwing things when he's at home. He bites. He kicks the cats. He ignores me and tells me "No!" He runs and hides from me when he's in trouble or doesn't want to do something. He tells us he hates us and wishes we were all dead. He tells me he's going to kill me.

Calgon doesn't take me far enough away. If I were a drinker, I'd be an alcoholic for sure. His counselor says it's going to be slow progress, but times like this, I swear I can FEEL gray hairs and hear my life clock ticking backwards: there's another year off my life. I don't think MY antidepressants are strong enough for days like these. I hope that in a few years, I can look back on this post and laugh and thank God for how far Billy has come. But, I really hope it doesn't take years.

The Modern Family

Once upon a time, in a land not too far away, there lived a queen. She was neither a good queen nor a bad queen, but a queen that tried her very best. Her dominion was not very large: in fact, her subjects were very limited in number, but she loved them very much and would give anything for their well-being.

By and by, the queen had a son. The very idea of raising a son struck terror in the heart of the queen. She knew nothing about raising a modern-day knight. She had no magic mirrors or book of spells to help her, for this land was not magical. She feared her son becoming like the wicked king and she longed to instill the love of the Creator in him.

However, when the prince was born, he immediately bonded with the queen. The babe would stare lovingly into her face, bringing tears to the queen's eyes. The prince made the queen feel like a queen. The apprehension the queen had felt melted into love and adoration.

When the boy was a toddler, the wicked king decided that he was too much of a mama's boy and took him under wing, much to the chagrin of the queen. The sweet baby became a hard to manage child. He threw tantrums, he screamed, he hit, he kicked, he threw things, he said bad words. The queen remembered the sweet baby and loved her son still. She hoped he would grow out of this stage.

The prince started preschool. The queen received phone calls from the school that the boy was being mean to other students and could not be calmed and would not give ear to his instructors. As the problems escalated and the years passed, the queen realized that the boy was not outgrowing the issues. They were only getting worse. She went to parenting classes, read books, asked other parents, researched online. She knew it must somehow be her fault. She had done something wrong in raising the boy. The boy still loved his queen mother, however, and preferred her company above all others.

The wicked king, meanwhile, attempted to kill the queen and run away with the prince and the royal princesses, but his plans were thwarted. He was arrested, dethroned, overthrown, and left to set up a kingdom somewhere else. The queen found a new king, who was good and kind and loved the prince and the royal princesses and moved them into his castle, where he lived alone with his faithful canine companion.

As the prince began elementary school, the good king and the queen began to be more and more concerned about his behavior. Words like "high functioning autism" began to haunt them. So, they sought medical help. A doctor, or wizard of the first degree, sent them to a wizard of the second degree. He proclaimed that the prince had an affliction known as ADHD, complicated with a side of ODD. They tried different potions from the apothecary until they found one that seemed to calm the boy down. His behavior was still a problem, but he was finally able to sit still. They were then passed on to a wizard of the third degree.

This wizard gave them new parenting techniques and suggested new punishments for the prince. The wizard charged them with keeping a scroll of the boy's actions. The queen gained confidence in her ability to handle the boy and be a strong mother. However, she missed her son when he had to be banished to the tower, which was frequently. The wizard saw elements of OCD in the boy's behavior. One of his troubling observations was that the prince seemed happiest when he was playing by himself, being left alone.

Though the wizard was still working on the problem, the queen became nervous when the wizard mentioned "occupational therapy" if the prince could not gain control over himself and his actions. This, to the queen, sounded like giving up on her beloved son. She was further troubled when the wizard told them that the prince was selfish and narcissistic and that if they were to quit at this point, they would have to learn to accept him for who and what he is: someone that expects the world to revolve around him. The queen was brokenhearted when the wizard told her that her son obviously did not feel the same about her as she did about him or else he would miss her when he was banished to the tower. Since he didn't seem to mind being in the tower alone, he obviously didn't care about spending time with the queen or being a part of the royal family. The queen felt as though she had lost that sweet baby and that she'd imagined the close relationship she had believed she'd had with the prince.

As with all fairy tales, the question is whether they all lived happily ever after. Unfortunately, I can't tell you the answer to that question because the next chapter hasn't been written yet. We still don't know what is causing the problems with my son or how to help him.